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A Diary of a Mesowarrior Living With #Mesothelioma #Asbestos – The Shoe Is On The Other Foot – Rayandmave’s Blog



 

 

 

 

 

 

 

 

 

The shoe is on the opposite foot now and I the affected person have change into the carer. Getting previous is difficult as we had such plans for our retirement and right here we’re with the plans in shreds and all we take into consideration is Mesothelioma and Asbestos which has purchased Chemo and Immunotherapy to our world Ray had a coronary heart assault as properly and needed to have a stent. He has been by a lot bless him however he has at all times been a beautiful carer and backed me in what ever mad scheme I’ve deliberate.

Now Ray goes by all the fear of lumps within the throat and Groin and the lengthy waits for scans and remedy.

He had an ear ache that was horrendous and I discovered him stamping his ft together with his head bent into his arms on morning.

Then it went and I stated perhaps crystals are passing by to your lymph glands similar to stones cross by the kidney. Then a lump appeared in his groin so I satisfied him to go to the GP.

He did and he had a xray the place they weren’t completely happy so an ultrasound bi-op was organized.

Nicely. I had a full diary of speeches and my very own appointments on the Marsden so making an attempt to suit much more appointments grew to become a juggling act.

We lastly acquired a date that was Okay and so the day arrived this week and we trotted off to the Kent and Canterbury Hospital on Monday.

I’ll copy Rays FaceBook feedback —

Up early tomorrow. I’ve my Extremely sound and Bi Ops at 10.30. Waited Lengthy sufficient.

Nicely been to get my bi op. Complete waste of time. four hours of titting about.
I get ushered right into a room and informed you might be in right here for particular remedy. 15 minutes later they take me in. Simply lay on the sofa . subsequent jelly throughout my throat, a man is extremely sounding my throat about three minutes . OK all executed !
You’ll be able to stand up now. What that’s it. All executed, No needles nothing. All Finished she repeats ,you’re going to get ends in 10 days. I might have had this executed at my native simply 5 minutes within the automotive up the highway. Ive waited weeks for a specialist who can do the bi op. And I didn’t get it. Now relying on the outcomes whether or not I’ve to return and get the Bi op. No marvel NHS is in disaster.
Now subsequent a fast snack and a 150 mile spherical journey for Mavis`s Scan.
No peace for the depraved they are saying.

After the Hospital Fiasco this morning. I used to be there for a Scan and a Bi op on my Throat . Nicely that’s what my letter stated.. As I stated this morning that I used to be out and in in lower than 5 minutes getting an Extremely sound on my throat All executed she stated . I stated what that’s all of it executed nothing else no needles? She repeated all executed. So after losing almost four hours we got here residence This afternoon we needed to go to the Royal Marsden for Mavis`s scan. I used to be sitting ready for Mavis to come out from the scan when my telephone rang. Howdy That is the Hospital. There was an error together with your appointment . Are you able to come again within the morning. for a biop in your throat and groin. So I used to be due 2 bi ops that wasnt in my letter. You didn’t get all of the process. We will do it for you within the morning. Unusual I’ve needed to wait weeks till a specialist was accessible. However as a result of they cocked up I can see him in lower than 12 hours discover.

So now it’s one other four hours tomorrow. So watch this area for follow-up tomorrow.

October 30th

Nicely a greater day as we speak ,despite the fact that they had been nonetheless confused. I requested what went improper yesterday and it was defined to me. It’s the system .
So as we speak I truly had an Ultrasound and biop on my lump. To not painful ,however at the least its executed now.
Simply wait .

So I had sat there yesterday as Ray went in for the Bi-Op he was a courageous soldier its me that’s falling to bits as if there may be dangerous information we now have to handle two cancers in our home maintain.

We now have at all times believed that as Ray has scarring and air pockets in his lung that he has escaped asbestos most cancers. We all know although that it could actually current itself in different places so we’re very fearful.

However life does go on and we’ll be taught from my most cancers that you may dwell with most cancers and revel in life.

His outcomes wont be as fast as mine that’s for certain so the lengthy wait begins.



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