Two weeks in the past we attended the Meso UK Affected person & Carer day and at this time each Alison and I had the honour of presenting on the NLCFN (Nationwide Lung Convention for Nurses) on our journey with Mesothelioma.
On the Meso Affected person & Carer day it was inspiring to listen to different sufferers tales (Tim Stokes & Liam Bradley); together with the specialists talking on the super quantity of present work occurring, the trials, the analysis and many others which supplies all of us Meso warriors hope for the long run.
At each conferences the Nationwide Meso audit outcomes (2014-16) have been highlighted and the important thing stats which stood out for me are:
7192 recognized throughout audit interval
84% of pleural Meso happens in Males
Common affected person age is 75
104 sufferers are under the age of 54
Solely 40% had chemo
four% have radical surgical procedure
Out of 7192 sufferers I’m solely considered one of two individuals who had full lung elimination!
38% sufferers survive 1 12 months
7% sufferers survive three years
This week one other milestone was achieved for us as I handed the three 12 months mark! Trying on the above stats it nonetheless exhibits how unbelievable fortunate we’re!
Due to this fact it added to the emotion at this time that we have been capable of share our three 12 months journey on the NLCFN discussion board on the Worldwide Centre in Telford. The purpose was to tell these current of our journey and hopefully to proceed to encourage attendees to proceed the nice work everyone seems to be doing to assist us as Meso sufferers and carers. Our presentation was based mostly across the following quote (thanks Caroline Cartwright ) that has caught with me because the begin of prognosis and can do going ahead :
Begin by doing what’s crucial; then do what’s attainable; and out of the blue you’re doing the unattainable – Francis of Assisi
One of many concepts that perhaps taken away for additional analysis (funding permitting!) is about scan anxiousness – watch this area!
The presentation ended up being much more emotional for me than I used to be anticipating, and apologies for these within the viewers who adopted swimsuit….It was a real honour for each Ali and I to be invited and listened too and because of all for arranging it. To obtain a standing ovation on the finish will stay with us endlessly. Thanks for all of the unbelievable work you’re all doing in all the assorted disciplines – medical, charity, authorized and many others!
I’d identical to to make a particular point out to family and friends who frequently donate to Meso UK and particularly my niece Chloe Christopher who arrange a fundraising web page for folks to donate for her 18th birthday. She raised an incredible £270. Thanks!
My subsequent weblog, all being properly, shall be in January once we discover out the outcomes of my subsequent CT scan!
Thanks for all of your continued help.
Dave & Ali xxx